set up a local resource center whereby Thalassaemics, their families and
well-wishes can get-together to exchange ideas and disseminate data,
information on Thalassaemia.
raise funds to run the various projects such as TAS ( Treatment
Assistance Subsidy ) , T*2 subsidy, motivation camps
to improve quality of life of Thalassaemics.
establish and maintain close
contacts with blood donor services and NGOs
to ensure adequate blood supply for our Thalssaemics'
support and cooperate
with local health care authorities in the care, treatment and
management of our Thalassaemics.
liase with other Thalassaemia Societies, both national or international,
commercial and research establishments
on latest developments in the management of Thalassaemia.
create public awareness and counselling
on Thalassaemia including screening for carriers.
update members and healthcare providers on new modalities of treatment
The PULAU PINANG THALASSAEMIA SOCIETY strongly believes
that with proper care and management, Thalassaemics can grow up to be
normal , productive adults. Thalassaemia is NOT an illness but a disorder,
so it is worth investing in, as
survival rate with proper management is high.
With total care,Thalassaemics are able to join the
workforce and contribute to society.This has already been proven in
countries where total care is available free of charge.